Clinic

Today Riley ventured out to SMA clinic.  He did really well and didn't cry at all while they were shocking his hand for the emg reading.  We had some great results today.  Last visit his emg reading was .9 and today it was 1.2! Given Riley's age and type 1 diagnosis they would expect to see readings well below 1.  How he gained some nerve function is both interesting and remarkable! After they do the little shocks they watch the nerve conduction while his hand is just at rest.  They are still seeing tons of small nerve reactions.  What starts to happen is as the nerves die off they branch out together leaving big gaps in the emg readings.  They don't see any of that happening yet. Riley is just one of a kind.  We were nervous that with these two illnesses he had this year that he would lose ground but he has bounced back and then some.  Keep up the good work Riley.

Word on the Street

Hey did you Know...

That jammies are so much better in Elmo!

Trick or Treat

Ok so this is a week over due but it's better late than never.  This year we tried to make the entire month of October full of opportunities to wear our Batman costume. First was Grandma Jenny's costume party then we were able to go to the Make a Wish Trick or Treat.  Since Lauren is a Wish kid too they joined us for the fun.

fishing for a prize

This is Riley's Wish Granter Nancy. It was fun to see her.

The bean bag toss. And Courts is helping too

Just our luck another Batman!

At the craft table the kids made these fun bats Lauren showing off her art work

Riley made one too. He was pretty adamant about gluing the eyes on by himself

This year Riley had his first Halloween at school! It was fun to send him on the bus all dressed up. I sent the nurse with the camera so she could take some pics

The best part was all the candy!

We still hadn't carved our pumpkins so after school we got down to business.  I wanted Riley to be able to participate as much as possible.  I drew some shapes on some paper and he chose which ones he wanted on his pumpkins.  I think he did a pretty good job.

I think this one is his favorite!

My favorite is his one with the round eyes. good job Riles!

That night we hooked up with our friends The Millars to hit a few houses.  Here is Lexy and Tyler. Lexy was so helpful carrying Riley's pumpkin bucket to each house to make sure he got lots of candy too. Thanks Lexy

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Riley had such a great time that he was out like a light at 7:30! Happy Halloween!