On Monday Riley had a very successful clinic day. He first started with his DEXA scan (fancy name for bone scan) and despite the lack of stander time the past few months he actually has new bone density growth in his hips! There was a slight decline in his overall bone density but he's also grown amost 5 inches since his last one. She told us that bone scans in kids can vary dramatically depending on any recent growth spurts. Riley is so patient with the scan, not that it hurts or anything it just takes about 30 minutes to do so a long time to wait for a 4 year old.
It was so hard to imagine that something like this could be with our grasp in Riley's life time. Maybe he'll get it maybe he won't but here's to hoping.