|So tall and proud!|
|waiting for the bus. He loves riding the bus|
|Alright Mom, enough with the pictures!|
The main reason for our Disney trip was to attend the annual Families of SMA conference that was being held at the Disneyland Hotel. We had never been to a conference and we thought since this year it was close enough to drive that we would sign up. It was fun to see families that we only correspond with through social media networks. The first night was the family meet and greet. We hauled Riley's power chair all the way out there so he could cruise around with all the other kids. It was so funny to see these little kids cruising and weaving in and out of everything. It was good for Riley to see other kids just like him.
At the meet and greet they had lots of fun games for all the kids to play and this incredible buffet of food. Disney sure knows how to do it best! Every year they have a relay race where the SMA kids race the doctors and researchers. Riley got to race Dr. Swoboda and Riley smoked her!
At the conference we were able to meet some fun new friends and people that we only correspond with via internet. Here are some of the friends we met
Riley's best friend of all came to the conference as well. None other than MICKEY MOUSE! The poor kid was so tired because we had done Diseny all day long before we went to the meet and greet so he was not giving us very good smiles.
|Riding in ready to meet all his new friends|
|Getting ready to race!|
|Maggie and Riley|
|Riley and Gwendolyn|
|Veronica and Riley|
You can't go to the California coast and not go to the beach. It was suppose to be a very sunny hot day but it ended up being kind of cloudy and chilly. Riley has never seen or touched the ocean. The water was quite chilly but he loved wiggling his toes in the sand.
And you can't go to the beach with out getting buried in the sand. All the kids just had to bury Marc.
After crashing in the waves we went and had a bonfire cook out with some delicious s'mores. What a great day for the beach.
We just got back after spending a week at the Magic Kingdom. It was such a fun trip and we were sad to come home. All though it is always nice to be back sleeping in our own beds. The main reason that brought us to Disney was the annual Families of SMA conference that was being held at the Disneyland Hotel. The conference was Thursday to Sunday so we thought we would go a few days earlier to enjoy some other sites of California. My cousin Aimee graciously opened her home for us to stay which was very fun. Riley enjoyed being with all her kids. Our first day was spent packing the car and driving. My grandma lives in St. George so we stopped their for the night and packed up and did the rest of the drive the next day.
|baby Clayton came too. Didn't want mom to miss out on the first swim so we worked on our tan instead|
|This is what you get when 6 kids under 7 hit the pool together.|
We all spent way more time in the pool than we thought we did so we're now bright red from head to toe. But it's all worth it in the end. Great way to start the Summer.
I need to back up a bit and mash together all the craziness of May. I can't believe how fast it flew by. We celebrated an anniversary, blew out some birthday candles, planted a garden, read lots of books and have already eaten our weight in smores (brought to you by our killer backyard fire pit).
Today was Riley's last day of pre-school. I'm not going to deny that I'm a little choked up about it. Such a big mile stone for him to be able to finish and move to the big school for Kindergarten this fall. I am so proud of all the accomplishments he has made over the last few years. School has been so good for him and he loves it. He loves riding the bus and playing with his friends. You can just see the joy and self confidence it has brought him. Looking back at these pictures from his very FIRST day to his very LAST he has grown up so much. Love you buddy!
|I found the most eggs bwhahaha|
|seriously these two couldn't be more alike|
|gearing up in pre-op|
Serioulsy the saddest picture. I thought for sure he would end up with black eyes. What a trooper!
We are now three weeks out and will see the Dr. next week for a post op. We're crossing our fingers that the surgery will be effective and he won't need any more interventions other than glasses.