Hey Beccah, I did get the mask, thank you so much! It would work fabulously if it wasn't to big(dang it)! Do you know if they make it in a smaller size? It covers her eyes. I'm gonna send it back with suzie unless you guys want to get together and meet? Thanks again. If they don't have a smaller one, I think I'm gonna have to get in touch with Canada again.
We were going to go but now I don't think so. There is to much swine flu in park city. I would rather Brynlee not pick it up, ya know what I mean? Are you guys going?
Hello- My name is Cherisse and my baby, Lucy, was diagnosed with SMA type 1 about a 1.5 months ago. I found your blog through the SMA website. I saw that you live in UT (my whole family is there and we are in CA). Do you guys receive medical services through UofU? I don't know if your little guy has treatments but I have been looking at the valproic acid and carnitine treatments and wanted to know someone else's opinion of it. My e-mail is cherisse.lunt@gmail.com and my blog www.chadncherissefamily.blogspot.com. I hope you are all well and I hope you don't mind if I check-in on you guys every once in a while:) Take care.
3 comments:
Hey Beccah, I did get the mask, thank you so much! It would work fabulously if it wasn't to big(dang it)! Do you know if they make it in a smaller size? It covers her eyes. I'm gonna send it back with suzie unless you guys want to get together and meet? Thanks again. If they don't have a smaller one, I think I'm gonna have to get in touch with Canada again.
We were going to go but now I don't think so. There is to much swine flu in park city. I would rather Brynlee not pick it up, ya know what I mean? Are you guys going?
Hello-
My name is Cherisse and my baby, Lucy, was diagnosed with SMA type 1 about a 1.5 months ago. I found your blog through the SMA website. I saw that you live in UT (my whole family is there and we are in CA). Do you guys receive medical services through UofU? I don't know if your little guy has treatments but I have been looking at the valproic acid and carnitine treatments and wanted to know someone else's opinion of it. My e-mail is cherisse.lunt@gmail.com and my blog www.chadncherissefamily.blogspot.com. I hope you are all well and I hope you don't mind if I check-in on you guys every once in a while:) Take care.
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