6/26/12

Cake Boss

I've always wanted to learn how to decorate cakes. I can never find a class on my days off and then by chance I was picking up some paper at Michaels and they had classes on Monday nights so I signed up. It was really fun even though there were these two really annoying girls in the class that always showed up late and were never prepared then on the last day of class one of them was trying to critique my cake like she was the expert. She was just jealous :) anyway I completed the 4 week course but am far from being the expert. It takes hours and hours of practice so I've got a long way to go. The last night we learned how to ribbon flowers. I sucked at it but given I had an hour and a half to learn and decorate the flowers didn't turn out too bad. Like I said lots and lots of practice. I decided to sign up for the next class which is all flowers. Just give me some time and I'm sure to be the next cake boss

6/19/12

Four Years of SMA

June 19, 2008...today marks 4 years since we received Riley's official diagnosis with SMA.  In someways I feel like it's been longer than 4 years just because we've been through a lot, Riley's been through a lot, enough to last a life time.
                     We've endured feeding tubes and g-tubes


                                                                surgeries
              
                                                                  Bipaps

Intubations

Countless number of tests and procedures

Tears, heartache and goodbyes



These past few years have brought an incredible sense of loss. A loss of a life that didn't turn out as planned.  It has taken the past 4 years to overlook that loss and get on with a new life, a life of hope and adventure.  Would I love for Riley to walk, to run, to talk and tell me he loves me? Absolutely! However I fear that If I were to trade those in I may lose his patience and courage. His zest for life and all the people in it.  His tender heart and sweet spirit.  His closeness to heaven and the presence of our Heavenly Father's love.  Riley was given a greater gift than any of us could imagine.  He is the greatest example of faith and the eternities.  I love Riley for who he is and I can't imagine him any other way.