Riley, You are too cute! I love your pictures. My name is MJ Purk. My real name is Margaret. I am 20 years old and am a junior in college. I have SMA type 1+, meaning I don't fit in any category. I have been reading your blog for awhile. I'm sorry to hear that you were diagnosed with SMA. I have an organization that sends blankets to kids with SMA and would love to send one to you. My organization is called B4SMA. My caregiver and several others make the blankets. If you would like more information, check out http://www.our-sma-angels.com/b4sma/ Should you decide that you would like to receive a blanket, please e-mail me with your post address. All we ask in return is a picture of you with your blanket covering you. Also, tell your mommy and daddy I can help answer any questions you may have regarding SMA, please don't hesitate to email me at any time. I am not afraid to answer any questions you might have. Big hugs to you and your family.
1 comment:
Riley,
You are too cute! I love your pictures.
My name is MJ Purk. My real name is Margaret. I am 20 years old and am a junior in college. I have SMA type 1+, meaning I don't fit in any category. I have been reading your blog for awhile. I'm sorry to hear that you were diagnosed with SMA. I have an organization that sends blankets to kids with SMA and would love to send one to you. My organization is called B4SMA. My caregiver and several others make the blankets. If you would like more information, check out http://www.our-sma-angels.com/b4sma/
Should you decide that you would like to receive a blanket, please e-mail me with your post address. All we ask in return is a picture of you with your blanket covering you. Also, tell your mommy and daddy I can help answer any questions you may have regarding SMA, please don't hesitate to email me at any time. I am not afraid to answer any questions you might have. Big hugs to you and your family.
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