Viral Update 2

Yesterday was kind of an up and down day.  He started waking up and biting on the tube so they had to start a sedation drip to keep him comfortable.  What I think is so funny is that they talk to him and tell him "Riley don't bite on the tube, that's how you breath if you bite down you can't breath." All he knows is that if he opens his mouth they're going to suction and I HATE that so nope not going to do it! They were able to wean down his respiratory rate and some pressure support levels on the vent. They went up and down on his oxygen and last night they actually got it down to 25% (21% is room air) but this morning it's back up to 35%. Dr. Swoboda came by this morning to check on him and she gave us some guidelines to pleasantly remind them of.  The one thing she discussed with us is his degree of scoliosis. She worried that it's possibly starting to collapse us upper lobes of his lung and she wants us to consider getting his back fixed.  She called Riley the 'new' kind of type 1 and that we need to be proactive so he can continue to have as good a quality of life as he's had. So that's something we'll need to discuss with the orthopedic the next time we go.
Ok so this next picture is not for a weak stomach but I had to post it. This is everything they've suctioned out of his lungs so far

Gross right!?! All I can say is the intubation was greatly needed.
So we will see what today brings and I will keep the updates coming. Thanks everyone for you thoughts and prayers. We are blessed with such great family and friends.